Some quick updates

First day back on the bike! 

I am back in physical therapy 2 times a week.  My therapist would like it if I could fit in 3 times but I am pushing for just the 2.  The diagnosis is weak at best- mild or slight lymphedema.  A 3% change since my last measurements a year ago.  I may notice more because I feel like I am really in tune with my body, especially when something does not feel right.  I am back to having to wear my compression sleeve on a regular basis and now have to practice manual lymph drainage massage on myself.  It sounds intense but it really is quite easy and only takes about 5-10 minutes.  It all seems to be helping, as the swelling in my arm is actually getting better and you almost can’t tell.  I think a lot has to do with me being back to my regular exercise routine.  I am a firm believer that exercise is the key to keeping a healthy lymphatic system and lymphedema under control.  It will never go away, but if managed properly, the symptoms can be non-existent.  In the grand scheme of things, this is more of a nuisance even with the swelling and pain it causes. 

It has not stopped me from getting back on the bike or back to the Pilates studio.  I have only really had a chance to ride outside 3 times since I was cleared to exercise.  I have been able to get to a couple spin classes which I most certainly need to whip my ass back in shape.   I am feeling the 5+ weeks of a sedentary lifestyle. 

I am still a bit skittish on the trails but I am already getting some confidence back.  No matter what, each surgery seems to take some confidence from me, on the bike.  As for my fitness, there was some major fitness loss but my endurance seems to have held up okay.  I am certainly feeling quite slow but I know it will come back. 

Overall, I am feeling so much better, especially without the implants pushing on my pectoral muscles when I pedal or try to maneuver over an obstacle on the trail. 

I have a lot of work to do but I am up for the challenge. 

S.M. 

Game On!

The last few weeks have been jam packed with work, family visits and many birthday celebrations.  Thank goodness I was so distracted since this has been a very long 5 weeks without exercise!  

Special Birthday visitors. 

Story time with MoMo

Birthday dinner with my guy. 

More birthday celebration...

Smiles. 

My follow up appointment with Dr DP was Wednesday and I was cleared to stop wearing my compression strap and am now free to start exercising.  There is still a tiny bit of fluid on my left side but nothing that should not absorb into my body-I hope.

 

You would think that I would have jumped right on the bike but that did not happen. 

Both my road and my mountain bike are in the shop getting tuned up.  I should have at least one of them back by the weekend.  While there is always my single speed- it currently has a flat tire and I was not quite ready to jump on the single speed, just yet.

   

It was 8 degrees Thursday morning so I opted to head to the gym to try my turn on one of the many cardio machines since the spin class was full.  It was probably better for me to start off slow.  I sort of enjoyed eating my way through the holidays so there is a lot of work to be done on my part. 

   

I won’t bore you with the details of a gym workout but I do want to share something about that morning.  

I was digging through my draw looking for clothes to wear to the gym.  I put on one of my old sports bras mostly for  comfort to protect my scars.  The scars are still sensitive and probably will be for a while.  I put a shirt over the bra and looked down.  I had a moment.  Not the “Oh, what have I done moment” but more of,  “You got this, woman!”.  This was my first time really showing off my flat chest openly where nobody knows me.  Funny thing was I don’t think anyone really noticed and if they did, I really do not care.   I actually felt so much freer while I was exercising.  The implants never felt totally comfortable and I always knew they were there.  This all comes back around to – this is all me!

 

I have been noticing some strange things happening with my left arm.  The cording is still there but it does seem less tight than before.  I know that when I get back in the Pilates studio, I can work on stretching that out some more.  The strange and somewhat disturbing part is the swelling.  It is in my hand, half my wrist and elbow area but my arm just looks bigger than the right one.  I have scheduled an appointment to go back to physical therapy to get reevaluated for lymphedema.    My unprofessional opinion is I already have it ad the compression band around my chest may have just restricted my lymph drainage.  It probably was a bad combination with surgery already being a high risk for developing lymphedema.  But, there was no choice. I am still hopeful that I can get this sorted out before it gets out of hand.   It is manageable but pretty uncomfortable and my compression sleeve just makes the cording hurt more.   

Game on!

I have most of my race schedule on the calendar for this season and registrations have already started to open for some of the more popular races that I want to enter.  I have a long way to go and a shorter time to get back into shape.  I want to attempt to actually be competitive this year so we will see.  Regardless, I have a full schedule of races planned.  The race season starts as early as April so it should be interesting.  I am sure to get my butt kicked but that is okay.  It will not be the first time.  I just have to do the work to build myself back up again.  There is something more rewarding in that than the actual race.    

Thank you for all the nice messages and support.  It is nice to know people are still following along.  

S.M. 

Walk in the woods with my guy. 

Inquiring minds want to know.

I will cut to the chase. 

My pathology report FINALLY came in today and it is all clear!  The delay had a lot to do with the holidays but also they were double checking some funny looking scar tissue- my technical translation.  The pathologists had to run additional stains to make sure that there was no cancer.   I do like that they were being thorough but really glad that wait is over.

Exhale…

I have been going back to the doctor weekly to get my left side drained of fluid. 

Today, the fluid was half of what it was last week so that is good news.  I do not have to go back for another two weeks but that also means I will not have exercise clearance for two more weeks.  Of course my birthday falls within that two week time period but oh well.  I still have to wear the compression strap 24/7 but I am getting used to it and I know this is just temporary. 

I have been feeling really well minus the fact that I still cannot ride my bike or exercise at all.  I am a tad grumpy about it but I can’t change it so no point in complaining (too much).  The scars are healing up nicely and I am more and more comfortable with my new self than I ever thought I would be. 

2013 has started off slow and a little bumpy but I have felt nothing but good energy for the days ahead! 

Happy New Year!

S.M. 

Recovery Mode.

The surgery went as planned and while I was quite groggy, I was sent home that very afternoon. 

   

I had both implants removed, extra skin was cut out and I was sewn shut, laterally.  The stitches run about 4 inches across and maybe a little longer on the left side.  The left side is a bit more indented as well but not as bad as I thought it might be.   The radiation damage is quite evident.  I had two drainage tubes placed, one on each side.  The tubes came out 4 days later because it seemed to not be draining enough to require them to stay in over the holidays. 

We are still waiting on the final pathology report and with the holidays, it is more delayed than usual.

I have been feeling really well and have hardly required any pain medication after the first day or so.   I had a couple rough mental days but a lot had to do with the effects of the anesthesia.  That stuff messes with my head.  I have really just been more tired than anything. 

Of course with my luck, my left side with all the radiation damage has decided to start building up fluid. This is common and usually the body can absorb it but in this case, it had to be drained this past Thursday.  I am now required to wear a compression binder wrapped around my torso.  It is quite uncomfortable and I must wear it day and night until I see the doctor again on January 2.  The fluid seems to be returning again despite the compression.  I just hope my body figures out how to disperse this extra fluid on its own.    It is not necessarily dangerous.  It is just really annoying and could cause me a longer recovery period with repetitive trips to the doctor to have it aspirated. 

   

So far, the new ‘look’ has not bothered me very much.   I have not had many opportunities to figure out my wardrobe since I have not been going out that much.  The new compression binder is not helping to work this out and is making things more awkward if anything.

 

The truth is, I feel the most pure that I have felt since this whole process started back in 2010.  It is my body and only my body that I feel when I rest my hands over my chest.  I can feel my heart beat again. The only thing left behind is the reminisce of what cancer did to my body- The scars that will forever tell the story.  The look is quite dramatic but it is all me.

Christmas was quiet and uneventful.  It is a strange time of year to be stuck in surgical recovery mode.  People are busy with their holiday plans and parties so there is a sense of isolation or loneliness.  I have mostly missed being able to ride my bike.  It seems sort of unnatural for me to end 2012 without being able to get a good pedal in.  Even when I was in treatments, I still was able to ride.  

I have to hold onto the good memories of the entire year and not reflect too much on the past two months.  

It will be 2013 before I know it and I will be back in the Pilates studio and back on the bike. 

Here is to a healthy and happy 2013 for all!