My account of life both on and off of two wheels...... "At least I'm enjoying the ride"
Showing posts with label radiation. Show all posts
Showing posts with label radiation. Show all posts

Saturday, December 29, 2012

Recovery Mode.


The surgery went as planned and while I was quite groggy, I was sent home that very afternoon. 
   
I had both implants removed, extra skin was cut out and I was sewn shut, laterally.  The stitches run about 4 inches across and maybe a little longer on the left side.  The left side is a bit more indented as well but not as bad as I thought it might be.   The radiation damage is quite evident.  I had two drainage tubes placed, one on each side.  The tubes came out 4 days later because it seemed to not be draining enough to require them to stay in over the holidays. 

We are still waiting on the final pathology report and with the holidays, it is more delayed than usual.

I have been feeling really well and have hardly required any pain medication after the first day or so.   I had a couple rough mental days but a lot had to do with the effects of the anesthesia.  That stuff messes with my head.  I have really just been more tired than anything. 

Of course with my luck, my left side with all the radiation damage has decided to start building up fluid. This is common and usually the body can absorb it but in this case, it had to be drained this past Thursday.  I am now required to wear a compression binder wrapped around my torso.  It is quite uncomfortable and I must wear it day and night until I see the doctor again on January 2.  The fluid seems to be returning again despite the compression.  I just hope my body figures out how to disperse this extra fluid on its own.    It is not necessarily dangerous.  It is just really annoying and could cause me a longer recovery period with repetitive trips to the doctor to have it aspirated. 
   
So far, the new ‘look’ has not bothered me very much.   I have not had many opportunities to figure out my wardrobe since I have not been going out that much.  The new compression binder is not helping to work this out and is making things more awkward if anything.
 
The truth is, I feel the most pure that I have felt since this whole process started back in 2010.  It is my body and only my body that I feel when I rest my hands over my chest.  I can feel my heart beat again. The only thing left behind is the reminisce of what cancer did to my body- The scars that will forever tell the story.  The look is quite dramatic but it is all me.

Christmas was quiet and uneventful.  It is a strange time of year to be stuck in surgical recovery mode.  People are busy with their holiday plans and parties so there is a sense of isolation or loneliness.  I have mostly missed being able to ride my bike.  It seems sort of unnatural for me to end 2012 without being able to get a good pedal in.  Even when I was in treatments, I still was able to ride.  

I have to hold onto the good memories of the entire year and not reflect too much on the past two months.  

It will be 2013 before I know it and I will be back in the Pilates studio and back on the bike. 

Here is to a healthy and happy 2013 for all!  

Friday, November 9, 2012

The Unexpected.


My 6 month oncology follow up was two weeks ago.  As I mentioned in my last post, there was no reason to believe that there would be anything to really report about.  Because my oncologist follows the “only scan on symptoms” protocol, I was not worried.  I have been feeling pretty great. 

The thing about the  ”cancer vortex’ is you never truly know what comes next. 
My appointment started off as usual. The nurse took my blood; I filled out my self evaluation sheet and waited some more in the overly crowded medical oncology office where the majority of patients are over 60. 

Dr W was extremely busy – more than usual, but she really gave me her full attention.  She was even more compassionate than I have ever remembered.  We talked about a lot of things- My treatment choices; side effects; my fibroid issues, babies after cancer and my overall well-being. 


Things did not start to get weird until the physical exam. 


Dr W: What is going on over here?  I do not remember this breast being so discolored?! 

Me: Well, it sort of started a few months ago but it does seem to have gotten worse. I assumed it was the norm and it was probably a side effect from radiation, no?

Dr W: I am sure it is nothing but I want you to get an MRI.  Oh and I am calling Dr M (radiation oncologist) over to have him take a look. 


I did not panic; I thought for sure she was just being overly cautious.  I had not seen Dr M since February 2011 (a month after my last radiation treatment) but he seemed to remember me enough to know what he was looking at. 


Dr M: Well, it could just be the implant and some lymphatic blockage but the only way to tell is a skin biopsy.  An MRI is not going to tell us what is going on with the skin. 

Me:  Is this something I can do with my plastic surgeon?  Wait…you are worried it could be skin metastasis? 

Dr M: No, not really but a biopsy is really the only way to know for sure.  Call you plastic surgeon and see what she thinks about a biopsy and the discoloring.
 

Both doctors agreed and they think this is nothing but now the words have been said, documented and I am stuck with following along with all the annoying and scary tests that would follow. 

I was able to schedule an appointment with my plastic surgeon for the following day.  Dr DP would know right away if she could/would biopsy the skin.   

As Dr DP looked me over she asked  me some questions, ran her finger down my radiated skin and then when she touched this one specific spot – I jumped up!   It is a spot that we have been ‘watching’ because the skin was really thin after my exchange surgery due to radiation damage.  I had thought it looked a little worse but this confirmed it. 

At this point, I was now standing up while she began sizing me up and grabbing my waist and my back trying to figure out what she had to work with.  I have been trying pretty hard to lose some of the extra tummy and toning up so she didn't really find much. 

The bottom line is my implant is failing.  This is in the side that was radiated 33 times.  The skin is just too damaged.  The implant is actually starting to show through the skin! That was why I had a lot of sensitivity to the touch.  Here I thought I was just getting my nerve sensation back.
 
The concern is that if we do not take this implant out now and look at alternate reconstruction options, this could end up being considered an emergency surgery and my options just went from 2 to none.
 
The other issue and the whole reason I went to see her is the skin that is turning color.  She brought my breast surgeon in to discuss and have her take a look.  The discoloration concerned her as well but mostly because they both think it is another issue with the implant and the constant tightening and tugging I have going on.  It is contracting and according to the photo evidence, rising higher by the month.  Of course that is causing me great pain but I just thought this was the way it was and I never really complained that much about it.  I just sort of accepted it as the new normal post radiation/reconstruction.
 
We knew there was a chance of this happening if I decided to go the implant route after radiation.  Some plastic surgeons won’t even touch radiated skin with an implant since it is very common for radiated skin to fail.  We took our 50/50 odds and went for it.  We were all  hopeful and thought I was in the clear for a while.  I did not think it would happen this quickly if at all.  It was just a year ago that I had my implants put in.  

The sadness, fear and overall frustration has really taken over on this. 

I had a biopsy last week.  It had to be in the OR since they could not risk my implant getting exposed and infection setting in.  That would add insult to injury.  I am grateful to report that my biopsy is benign and the skin sample is normal.  Dodged a bullet on this one!   
  
The new reconstruction options are very limited.  Everyone will have an opinion but there really is no great option for me. Either way, I am having surgery on November 27.   Instead of starting my bike race training for the 2013 season, I will be getting my ass kicked by another major surgery.  

I will share more about the type of surgery in another post.  It is just too exhausting to explain right now.  It has been consuming my mind and my extra time doing research.  

It can always be worse but for me, this is a big setback that I had not planned on.  It is not cancer this time (Thank GOD) but it is because of the cancer treatments that I have to go through this again.  

The good news is we were spared during the most recent storms that tore through the north east coast.  It is really bad for a lot of people and my heart hurts to see all the devastation.    

I was still able to get up to Maine for my nephews 2nd birthday and it was a nice distraction from ALL the craziness around us and within my head. 

Happy Birthday J!  
Waiting for his birthday dinner!  
The cake- A handmade log truck.  So fitting for Maine and he is obsessed with trucks!  


Hope all my east coast blogger friends are safe and warm. 

S.M. 

Wednesday, January 5, 2011

No more tanning...unless I'm at the beach!

As planned, Monday was my final radiation treatment.  It is almost too difficult to describe the feeling that day.   It was the last time I would climb up on that cold metal table.  My radiation therapists T and R were both there and sharing in my glory.  It always takes a minute or three for them to get me all lined up on the table so that I am properly aligned with the machine.  R was telling me about her holiday weekend and T was getting me all dialed in.  Then I heard the same line that I have heard for 33 days..."All set, we will be right back".  I usually just say OK but this time, I yelled out "Hey T- make this a good one!".  Right before the giant door closed me in I heard, "It will be the best one yet Rebecca".  I closed my eyes and waited the moment to hear the buzzer.  I started my mantra - a little prayer I came up with to ease the scary moments.  This was the last time I hope I ever hear that noise again.  The 20 seconds ended- this particular treatment only lasted that long.  Usually there were 4 of those.  The buzzer stopped and I felt it...The big smile across my face.  I wanted to jump up off that table with a giant Yahoo,  but I just kept it inside.  R and T walked back in the room to help me get off the table and they both gave me a big hug before sending me on my way.  It was bitter sweet to know I will not see those folks every day...But they understand that most patients never want to be back there again.  I plan to visit but not until my follow up with DrM.  That is not for six weeks!  According to DrM, my skin looks the best he has ever seen.  Scary thought considering I am pretty well fried and my underarm is starting to peel.  I will take his word for it and from what I have heard from others experiences, I am feeling pretty lucky. 

While I have a huge sense of relief to be finished with the major treatments, I have a little ways to go yet.  I must allow myself some time to heal from the radiation and continue to allow my body to flush out the remaining chemicals from my system.  I am gauging this by a few different things but one is by my finger nails.  One of the many side effects of chemotherapy was my nails all turned white from the nail bed up and became extremely brittle.  I was lucky they didn't fall off but  it was still so weird and pretty ugly.  They are almost all grown out now.  I have maybe another month to go.

With the new year beginning so well, I promised myself I would not look too deep into the belly of 2010.  However, while cleaning up my office desk yesterday, I came upon an envelope of photos that have been given to me over the year.  They are actual prints and I do not have the original digital so I decided to scan some of them into my computer.  Here is one that G and I both found pretty hard to look at.  It brought up a lot of emotion both individually ( I'm sure his experience and memories of this is different than mine) and together.  I almost can't look too closely at it but thought I would share it with all of you.  Some of you were there that night.  It was taken on May 25, 2010 - The night before my surgery. 

Heading home after an evening I will never forget. 

For now, I am trying to separate these two years but it is not as easy as just turning over the calender.  Where does 2010 end and where does 2011 really begin? I will just have to let time work that out.

Happy New Year to all my friends and family who have supported me over the last year and to my random blog readers out there....Let this year bring us all many wonderful things!

Thursday, December 30, 2010

Wrapping things up.

Christmas has come and gone....We started off with a Christmas Eve morning ride on some new trails in Yorktown. I was so grateful to be out in the woods among good people and the fresh air.  It meant more to me than just another other group bike ride- thank you everyone that was there.  

Too far away but you get the point.

As planned, we headed into NYC for the evening with G's parents and sister.  We started off with evening mass...yes, we all went to church and it was pretty special.  The decoration, the music, the spirituality-  It was almost more than I could handle emotionally.  We spent the night in NYC after a lovely meal and with great company.  After a relaxing morning, we headed up north to my father and Anne's for a low key Christmas dinner.  Anne's parents were up from Florida and  a couple of their friends joined us as well.  I didn't take many Christmas photos but Anne sent me this one of the four of us.

Christmas Day Smiles.

Christmas was followed up by a huge snowstorm that just about shut down the east coast. We slept in that morning and realized we better hurry if we wanted to get a ride in before the trails were all gone...The traction was perfect and G and I had a great ride in the woods that day.

Stopping for a rest and a photo opportunity. 

The following day after the storm,  my guy frantically shoveled the car out so I could make it to my radiation treatment (we don't want to miss any). That afternoon we met up with some friends for some sledding up at Rockwood- this has and always will be a prime place to go sledding because the hill is so steep and  the view of the Hudson is fantastic.  I was pretty tired from treatment and feeling a little fragile, so I opted to watch. G and I walked around amidst the sledders while the wind howled and tried to blow us off the hill.  The wind was so strong that day that it almost blew all the snow off the top of the hill.
G posing at the top of the hill. 



Seeking shelter under a tree.


The new year is almost here and of course the end of my radiation treatment is coming to an end.  I was hoping to be finished by December 31st, but it turns out I have one more left on Monday.  But that is ok, as I have to see Dr M anyway for a follow up.

Like many people, the end of the year is a time when we look back and reflect on where we have been.  I started to remember back to last New Years and how I had no clue what would lie ahead for me.  G moved in last February and shortly after that ( not even two months later) I was diagnosed with cancer.  Frankly, that is as far as I went with this "looking back" on the year crap. So much of the last year  is still very dark for me to think about.  I can only look forward from here.

As you can imagine, I am anxious to start a new year.  While much of the effects of my treatments will linger,  G continues to remind me that I have come a long way since May.  I continue to try and stay in the moment, but there is some level of anticipation of what this new year will bring.  All I really wish for is to be healthy and cancer free. A pretty simple wish for most people, as we take for granted our health- but this year that is all I hope for.

Thank you for reading and stay tuned for what might happen in 2011!

Wednesday, December 22, 2010

The final countdown.

It is the final countdown of my radiation treatments.   I have 5...yes only 5 more radiation treatments left.  I am exhausted but surprisingly finding the energy to get a lot done in a day.  It must be the excitement that this huge part of my treatment is almost over.  I might be over doing it a bit since I passed out on the couch last night before 9 pm.

The treatments are going as planned.  About two weeks ago, my skin started to develop an itchy rash on my sternum and my collarbone.  This is to be expected and Dr. M. does not seem to be too concerned.  If my skin starts to bubble and peel, than we up the medicine to something stronger but for now, I will keep using this steroid cream and Biafine.  It seems to be doing the trick and my skin remains status quo.   I was advised that the skin could get worse after I stop treatments.  I guess the effects of the radiation keep going and then the skin begins to heal.

Like most, this has been a hectic month.  I have had all my routine Doctor appointments and then some.   I have been able to work more now that I am feeling better but I still get tired quickly.  We have been more social with holiday parties and G had a birthday last week.
It was too cold for a ride so we went for a hike instead.  
We went out to eat at the Red Hat - Make a wish G!
Even thought we did not ride on G's birthday, we did manage to get some really great riding in last weekend.  Saturday we ventured up the OCA  for a two hour pedal.  Always good for my endurance training.  Sunday was a surprisingly balmy 35 degrees and after a great nights rest and relaxing morning, we headed to Graham Hills.  I felt steady for the first time in a while and G and I had a great time in the woods.

Christmas is days away and I almost finished my holiday baking and trying to tie up some loose ends for the big day.  We plan to spend Christmas Eve and morning with G's family in the city and then Christmas afternoon at my fathers.  It took me a while to get into any sort of holiday spirit but baking my traditional and not so traditional holiday goodies helped.

Oatmeal Cranberry cookies- my new favorite. 
Mini Zucchini Breads- apparently they are delicious 
I had good intentions of getting holiday cards out....sorry in advance, but it didn't happen.  I am grateful to have so much love in my life.  Thank you to all of my family and friends who have helped me during a very difficult time in my life. Especially to my guy for all you have done for me this year.  It has not been easy and I'm sure at times I have not been easy to deal with.  I could not have done this with out you. 

So, the final countdown of this phase of treatment and 2010 is near.  Merry Christmas to you and your families and here is to a healthy and peaceful new year!

Wednesday, December 8, 2010

Halfway and cold days.


Winter has hit NY pretty hard.  We have been enjoying a mild fall until this past weekend.  It got cold really quick.  While most people flee for the indoors, we sought shelter in the woods.  My guy has been a big motivator to get me back out there riding.  Not only did he build me a new plush bike to ride ( yes, my guy is awesome) but he is always enthusiastic about riding our bikes and encouraging  me.  As much as I love riding my bike more than anything, I came to a harsh realization-I am at the bottom of my game.  I even took a moment on Saturday and said, out loud - I think I will quit mountain biking....It's just too hard.  I expect to be out of shape but I feel like I am so far behind where I was last April that it will be impossible to ever have that same connection to my bike.  Maybe there is some truth to that. 

Sunday was the colder of the two days and even though "I quit mountain biking" the day prior, my guy and two of our dear friends convinced me otherwise. That morning, I sat in G's car while we waited for our friends to arrive.  The heat was pumping out of the vents and the seat warmers were roasting my butt and I thought, how did I used to do this?  I actually used to ride in colder weather than that and even snow!   

This was taken last year on New Years Eve day. I don't remember if I was cold but look at those smiles. 
There was no snow on Sunday but I was bundled up and feeling the chill.  While I am still off my game and still out of shape, I managed to have a great time in the woods.  Isn't that what it is really about anyway?



Vortex update:

I have passed the halfway point of my radiation treatments.  I have completed 17 out of 33 treatments and so far, it has been pretty uneventful.  The daily routine is getting old but I just keep reminding myself that this will not last forever.  My skin is turning the perfect "pink" and while it is tender, it is holding up strong.

My three weeks were up and I had my Herceptin treatment yesterday.  For the first time in months I did not have much to complain to Dr. W about. I'm sure she was happy about that.

It is hard to believe all the crap I have had to go through the past 9 months. It is a very long treatment process to which oddly, I am very grateful for.  Without these treatments.....well, we don't need to discuss that.

Wednesday, November 24, 2010

Week two of radiation and Thanksgiving.

I kept thinking over the course of last weekend that I was tired from such a long week of appointments, but I am now beginning to think the radiation has a huge part in why I am feeling so exhausted these days. 
 
Saturday morning G and I attempted to get up and meet a group ride at Blue Mountain, but even with our best efforts (OK, so maybe we could have tried harder) we missed the departure time by an hour.  It is just as well since I was not feeling on top of my game.  We rode for a couple hours and while we managed to find some of the group in the woods for a nice chat- we rode for the most part, just the two of us.  I am so grateful to have such a great guy who wants to ride with me no matter what.  I always enjoy our time together and the time in the woods is even more special. 

After our ride on Saturday, I chose to rest up since I had plans to go to my mom’s for dinner.  My brother and his family were in town for the night and I didn’t want to miss my chance to play with my nephew.  I was still pretty tired, but managed to find the energy to give my nephew his first lesson of flashlight tag- priceless.  By the end of the night, I could hardly lift my arms (not sure what that is all about) and I no longer can scoop my nephew up in my arms to lift him up to my chest.  I am too weak…not to mention he is getting really big.
"do you think we will see any animals?"
 

Sunday morning had a lazy start.  G and I slept in and decided to keep things simple and we headed up the Aqueduct toward Croton.  It’s a great workout but not too hard on my body.  I felt surprisingly better than the day before.  We headed north from the house. 
Golden trails. 
Trying to get a selfie while pedaling. 
I better quit playing with the camera...G might catch me. 
Big Bird in Flight.
Lunch at the Silver Tips Tea House- Post ride.
 
It was a golden Sunday and I would not have done anything different- Except maybe take my anti anxiety pill before I went to bed.  

Unfortunately, I did not sleep well this past Sunday night, so come Monday morning, I  was once again exhausted.  I have tried to wean myself off my anti-anxiety medicine, but this may not be a good time for me to do this with all the appointments for my radiation treatments.  I woke up Sunday night in a total panic.  G is once again, so comforting.  He wrapped his arm around me with sweet kisses and whispered “it will be ok; shhhhh-it will be ok.” I could not really remember all the details of what really woke me up expect the feeling like my heart was going to jump right out of my chest.
 
During my radiation treatments, Monday appointments are a little longer than the rest of them.  I go into the radiation room as normal but before they can do the treatment, they have to take x-rays to make sure nothing has changed since the week prior.  Apparently I had a 1mm change in one of the 4 settings but nothing that can’t be corrected by the touch of a button.  After my treatment, the nurse comes and gets me and I meet with the doctor.  Dr M always answers all my questions and helps me get through some of my concerns.  He reminds me again of why I need radiation and takes a look at my skin to make sure I’m holding up ok.  So far, so good and I will continue to use the Aquaphor as a moisturizer until he advises me otherwise.  

Today after my radiation treatment, I had an echocardiogram.  While on the Herceptin drug, I am required to have my heart checked every three months.  I opted out of the MUGA scan this time since it is more radiation to my body and the eco is non-invasive and done with ulta sound.  From a clinical standpoint, it isn't always the best read on the heart, but my tech was able to get a great picture this morning.  The good news is my heart looks normal and I'm good to go!

Tomorrow is Thanksgiving and I am grateful for all the wonderful people in my life. I get the day off of treatment only because they are closed.  I will be back on schedule Friday morning.  I am happy to have the extra break in the week and plan to enjoy my morning with my guy on the trails before we head to his parents for the feast. 

Have a wonderful Thanksgiving everyone!



 

Saturday, November 20, 2010

Working on my tan.


I started my radiation therapy this week.  This is the newest  phase in my  Cancer vortex.  I had been looking forward to having another week "off" of any sort of treatment since the initial plan was to start after Thanksgiving, but in some ways it is best to just get this over with.

Radiation will be a series of 33 treatments-  It will be done every day, Monday-Friday over a course of roughly 6 weeks. It is not as simple as just showing up for treatments. There is a two part process  to go through before I could actually start my treatments. 

The first part was to have my simulation done- which I did a couple weeks ago.  Each new phase has been nerve wracking.  Anyone can tell you what to expect but until you are there, in the moment, you never really know how you will react.  On the morning of my simulation, I was lead into the dressing room by a  very pleasant radiation therapist.  He showed me where I would change and where the lockers were to store my personal belongings.  Every day I will come in there, get undressed from the waste up and put a gown on.  I will sit and wait for the therapist to come and get me.   The radiation oncology department has a different intensity to it.  Everyone who has gone through this tells me it is “easier” than chemo, but for me it completes this sci-fi experience of the whole cancer vortex.   Maybe I just watched too many Twilight Zone episodes with my father (mind you I was under 10 years old and these were very scary) but there is something to be said about what goes through your mind when you enter the cold, sterile rooms.  There are giant machines in the middle of the room and molds of other patients body parts stacked up on a shelf. These molds each have their own story to tell, but this of course is mine. 

For the simulation, I walked into this huge room and there is a CT scanning machine in the middle and a large glass viewing room off to the side.  The nice radiation therapist ( they are all lovely people)  was trying to make me feel more comfortable with my surroundings.  He began to explain to me what will be happening.  I had read the little radiation booklet they gave me during my consultation, but who really remembers all of that when you are in the moment?  I was told I had to lie down on the long metal sliding table with my left arm up over my head and not move for at least 30 minutes.  During this time, my radiation oncologist Dr. M is sitting in the booth viewing the scan and starting the process to create my own personal radiation map.  The CT scan helps to make sure he knows where my heart and lungs are situated so he can try to avoid them-I certainly wouldn’t want them to just point and shoot.  On the table I was laying on is a bag filled with a chemical mixture similar to the molding foam you can get from the Home Depot.  It is in a bag so it doesn’t actually touch my skin, but it is heat activated so while I’m lying there not moving, they are also creating a mold of my torso.  This mold will be used for each treatment to ensure I’m in the same position each time.  Once Dr M. got the map of my chest that he was comfortable with, they then used these red laser lights from the ceiling to help the therapist mark my body with a Sharpie.  He then actually tattoos a dot in each one of those spots. I think I have about 7 of these marks.  This is to show the radiation team where my radiation field is (where to zap me).  They will use these permanent tattoos daily when they set me up on the radiation table. 

Part two is what they call a dry run.  This is to double check that everything is all set to go.  I had to go in last week and this was actually done in the radiation room.  There are two rooms.  One on the left and one on the right.  I will always be in the room on the left. I guess it is  all about consistency and routine.  Both have huge doors that slide open with red and green lights over them to indicate a treatment in session.  I was not receiving a treatment on that day but they walked me through the exact steps.  They had to take some more x-rays, line me up to my
 tattoos and make sure the field and the map all match up.  I do like all this double, triple checking- I would hate to have them miss!  I have even had a nightmare that I moved while being radiated and everyone screamed “NO, STOP the Machine”.  It was a  horrible dream.

Monday, the day of my first radiation treatment, came very quickly.  I was very nervous.  I got up on the cold metal table which had only a sheet and my mold on it.  I nestled right into my mold and my therapist is talking me through the process again while the lights are off and she is using those red laser lights to line up to my tattoos.  I had my head turned slightly right so I could not really see what she was doing. She has me all set up to go and before she leaves the room, she asks me what music I like.  There is a CD player in there but I forgot my music-  They had told me I could bring my own music.  But since I did not, she turns on the lights so she can see me from the outside viewing monitors, hits play on the CD player and walks out of the room saying “I think it is the sound track to Glee.  Ok, I will be right back and remember stay still”  

I am all alone in what is now the very bright cold scary room- I am not only not able to move, but I am stuck listing to a horrible rendition of "Don’t Stand So Close to Me" from Glee.  Note to self, bring your own music.  I close my eyes and try to find my happy place but can’t help the tears rolling down my cheeks into my ear.  Thank GOD this doesn’t last but 6 weeks and each session is only about 15 minutes.  I tell myself  "I can do this."  Now, what music do you think would go best with radiation? 

Monday has come and gone and I have completed my first 5 treatments and I have only 28 more to go.  It has gotten a little less scary but I am still nervous about what it is doing to my skin and my body.  I still have to finish reconstruction at some point down the line and I would hate to develop lymphodemia after all of this crap.  I have pretty fare skin and I’m already turning a little pink.  Right when I leave the treatment room I have to put Aquaphor on the area in which they are treating.  This area starts from my sternum, down to my lower rib cage, up under my arm where they removed my lymph nodes and all the way up over my clavicle.  Of course don’t forget the breast itself.  They are treating this large area due to my pathology results.  I had positive lymph nodes and extra nodal extension which means the cancer got into the fatty tissue surrounding my lymph nodes.  The clavicle area is because there is breast tissue that high up that cannot be removed in surgery and there are lymph nodes up there they want to treat as well.  They are also radiating my chest wall, near where my tumor was, just in case the cancer decided to detour to my lungs.  I have to keep reminding myself that my PET scan was clear and I received clear tumor margins and this is all done as insurance to try to keep from getting a local recurrence.

I had a routine follow up with my oncologist Thursday before I had to get my Herceptin treatment.  It is hard to believe it has been three weeks but time flies….My blood counts were “perfect” so it is good to know my body is bouncing back and that I am able to produce my own white blood cells without the help of modern medicine. Just a combination of  healthy eating, fresh air and riding my bike are all that I need.
  
It is Saturday which means I get two days off of working on my tan. I am looking forward to another great fall weekend of riding with my guy. Yes, I am back riding after my little mishap two weeks ago-my ribs and bruising have healed up quickly.  I remain cautious but frankly, I have to ride my bike.  It is what keeps me centered. 

I hope you have a great weekend!
Thank you for reading.